Canadian Society for Mucopolysaccharide & Related Diseases Inc.

When families learn that their child has been diagnosed with MPS or a related lysosomal starage disease, that may potentially take their child’s life, it places on them a heavy emotional, physical and financial burden that few can relate to or understand. 

The Canadian MPS Society helps ease the burden by directing families to important sources of information, research and medical help, and by connecting them with other families experiencing similar situations to expand their network of support. We also provide financial support to families through our —to date, we have funded over $100,000 in grants to offset the many costs incurred with a diagnosis.  We try to help families to f know that they are not alone in their journey.

Our programs and services include:

  • Educational Resources– Available in both english and french
  • Financial Assistance Program– Providing financial support to help families manage costs associated with care and treatments of MPS and related diseases
  • Advocacy – Supporting families with accessing appropriate care and treatment, connecting to other members for mutual support, and during times of loss and bereavement
  • National Conference – Our biennial national conference brings together the MPS community to learn about advances in care and treatment while developing life-long friendships
  • The e-Connection – Our monthly digital newsletter is a current source of news from Canada’s MPS community, including stories from our members and partners, research and treatment updates, and information about upcoming events.

The Canadian MPS Society exists to support all those affected by MPS – individuals, caregivers, families, friends, support workers, and health care providers. Our staff are available by calling our toll-free number: 1-800-667-1846 or by email: info@mpssociety.ca

Futuros (0)

Lo sentimos, no hay próximos eventos

Pasados (5)

Imagen principal de MPS Cup 20th Anniversary Gala

MPS Cup 20th Anniversary Gala

Tue, Aug 29, 6:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de 2023 Canadian MPS Society's National Family Conference

2023 Canadian MPS Society's National Family Conference

Fri, Jul 21, 4:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de 17th Annual Fundraising Gala - A Rare and Starry Night

17th Annual Fundraising Gala - A Rare and Starry Night

Sat, Oct 2, 5:00 PM EDT

Consulta el precio de los boletos en el evento

Imagen principal de CanMPS 2021 National Family Conference

CanMPS 2021 National Family Conference

Wed, Sep 15, 3:00 PM EDT

Consulta el precio de los boletos en el evento

Imagen principal de RARE 2019 -  Canadian MPS Society's 16th Annual Ignite Hope Gala

RARE 2019 - Canadian MPS Society's 16th Annual Ignite Hope Gala

Wed, May 15, 5:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de MPS Cup 20th Anniversary Gala

MPS Cup 20th Anniversary Gala

Tue, Aug 29, 6:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de 2023 Canadian MPS Society's National Family Conference

2023 Canadian MPS Society's National Family Conference

Fri, Jul 21, 4:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de 17th Annual Fundraising Gala - A Rare and Starry Night

17th Annual Fundraising Gala - A Rare and Starry Night

Sat, Oct 2, 5:00 PM EDT

Consulta el precio de los boletos en el evento

Imagen principal de CanMPS 2021 National Family Conference

CanMPS 2021 National Family Conference

Wed, Sep 15, 3:00 PM EDT

Consulta el precio de los boletos en el evento

Imagen principal de RARE 2019 -  Canadian MPS Society's 16th Annual Ignite Hope Gala

RARE 2019 - Canadian MPS Society's 16th Annual Ignite Hope Gala

Wed, May 15, 5:00 PM

Consulta el precio de los boletos en el evento

When families learn that their child has been diagnosed with MPS or a related lysosomal starage disease, that may potentially take their child’s life, it places on them a heavy emotional, physical and financial burden that few can relate to or understand. 

The Canadian MPS Society helps ease the burden by directing families to important sources of information, research and medical help, and by connecting them with other families experiencing similar situations to expand their network of support. We also provide financial support to families through our —to date, we have funded over $100,000 in grants to offset the many costs incurred with a diagnosis.  We try to help families to f know that they are not alone in their journey.

Our programs and services include:

  • Educational Resources– Available in both english and french
  • Financial Assistance Program– Providing financial support to help families manage costs associated with care and treatments of MPS and related diseases
  • Advocacy – Supporting families with accessing appropriate care and treatment, connecting to other members for mutual support, and during times of loss and bereavement
  • National Conference – Our biennial national conference brings together the MPS community to learn about advances in care and treatment while developing life-long friendships
  • The e-Connection – Our monthly digital newsletter is a current source of news from Canada’s MPS community, including stories from our members and partners, research and treatment updates, and information about upcoming events.

The Canadian MPS Society exists to support all those affected by MPS – individuals, caregivers, families, friends, support workers, and health care providers. Our staff are available by calling our toll-free number: 1-800-667-1846 or by email: info@mpssociety.ca

Eventos

Lo sentimos, no hay próximos eventos
Imagen principal de MPS Cup 20th Anniversary Gala

MPS Cup 20th Anniversary Gala

Tue, Aug 29, 6:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de 2023 Canadian MPS Society's National Family Conference

2023 Canadian MPS Society's National Family Conference

Fri, Jul 21, 4:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de 17th Annual Fundraising Gala - A Rare and Starry Night

17th Annual Fundraising Gala - A Rare and Starry Night

Sat, Oct 2, 5:00 PM EDT

Consulta el precio de los boletos en el evento

Imagen principal de CanMPS 2021 National Family Conference

CanMPS 2021 National Family Conference

Wed, Sep 15, 3:00 PM EDT

Consulta el precio de los boletos en el evento

Imagen principal de RARE 2019 -  Canadian MPS Society's 16th Annual Ignite Hope Gala

RARE 2019 - Canadian MPS Society's 16th Annual Ignite Hope Gala

Wed, May 15, 5:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de MPS Cup 20th Anniversary Gala

MPS Cup 20th Anniversary Gala

Tue, Aug 29, 6:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de 2023 Canadian MPS Society's National Family Conference

2023 Canadian MPS Society's National Family Conference

Fri, Jul 21, 4:00 PM

Consulta el precio de los boletos en el evento

Imagen principal de 17th Annual Fundraising Gala - A Rare and Starry Night

17th Annual Fundraising Gala - A Rare and Starry Night

Sat, Oct 2, 5:00 PM EDT

Consulta el precio de los boletos en el evento

Imagen principal de CanMPS 2021 National Family Conference

CanMPS 2021 National Family Conference

Wed, Sep 15, 3:00 PM EDT

Consulta el precio de los boletos en el evento

Imagen principal de RARE 2019 -  Canadian MPS Society's 16th Annual Ignite Hope Gala

RARE 2019 - Canadian MPS Society's 16th Annual Ignite Hope Gala

Wed, May 15, 5:00 PM

Consulta el precio de los boletos en el evento